
Over the past six decades, huge medical advances have sprung from the cells of Henrietta Lacks, a poor, African-American mother of five who died in 1951 of cervical cancer. But Lacks never agreed that the cells from a biopsy before her death taken could be used for research. For years, her own family had no idea that her cells were still alive in petri dishes in scientists’ labs.
They eventually learned they had fueled a line called HeLa cells, which have generated billions of dollars, but they didn’t realize until this spring that her genome had been sequenced and made public for anyone to see.
On Tuesday, the National Institute of Health announced it was, at long last, making good with Lacks’ family. Under a new agreement, Lack’s genome data will be accessible only to those who apply for and are granted permission. And two representatives of the Lacks family will serve on the NIH group responsible for reviewing biomedical researchers’ applications for controlled access to HeLa cells. Additionally, any researcher who uses that data will be asked to include an acknowledgement to the Lacks family in their publications.
The new understanding between the NIH and the Lacks family does not include any financial compensation for the family. The Lacks family hasn’t, and won’t, see a dime of the profits that came from the findings generated by HeLa cells. But this is a moral and ethical victory for a family long excluded from any acknowledgment and involvement in genetic research their matriarch made possible.
It took more than 60 years, but ethics has finally caught up to a particularly fast-moving area of science: taking tissue samples for genetic research. Thanks to the efforts of a dogged journalist, some very thoughtful science leaders in Europe and the U.S., and an ordinary family willing to learn about a complex subject and then to do the right thing to help you and me and our descendants, a long-standing wrong has now been fixed.
[youtube=http://www.youtube.com/watch?v=cvm7Fqbpqcg&w=560&h=315]
The full album, which includes songs with names like “Veggie Luv,” by Monifah and J Rome, “Hip Hop LEAN,” by Artie Green, and “Give Myself a Try,” by Ryan Beatty, will be released on Sept. 30. Let’s Move! Executive Director and White House assistant chef Sam Kass says the White House is fully behind the initiative to use hip-hop – and other genres of music – as a tool to get kids to live healthier lives.
“Cultural leaders and visionaries in our country can give these messages to kids in a way that’s not preachy. Kids are going to be dancing and listening to the music,” he says. “I think hip-hop in particular – so many kids love hip-hop. It’s such a core part of our culture …and particularly in the African-American community and the Latino community which is being disproportionately affected by those health issues.”
African-American children are more than 50 percent more likely to be overweight or obese compared with white children, and Hispanic children are nearly 30 percent more likely, according to a 2008 studypublished in Journal of the American Board of Family Medicine
If all goes according to plan, some 10 of the 19 songs on the new album will be made into music videos, much like the hip-hop video in which Michelle Obama appeared. Those music videos will then be distributed to schools across the nation – starting with 40 schools in New York City, and then to schools in San Antonio, Philadelphia and Washington D.C. The hope is that teachers will use the videos during recess, physical education classes or even passing periods to encourage kids to get moving.



According to
In an appearance on The Tonight Show with Jay Leno, President Barack Obama on Tuesday night said that he expected Russia to welcome gay and lesbian athletes to the 2014 Sochi Olympics because the country has “a big stake in making sure the Olympics work.” 


