When you’ve been diagnosed with multiple sclerosis, all sorts of questions and concerns start racing through your mind:
“Am I going to be bound to a wheelchair for the rest of my life?”
“Will I no longer be able to do the activities I love?”
These are very legitimate concerns and you may even feel as if you’re losing control over your life, which is understandable, but one of the best ways to regain control is by gathering your thoughts so that you can ask your doctor all the right questions.
Multiple Sclerosis is a disease to the damage of the covers of nerve cells which disrupts the ability of parts of the nervous system to communicate, resulting in physical, mental and sometimes psychiatric problems. It is the sisease that forced comedy legend, Richard Pryor, into a wheelchair in the last days of his life
With the help of Dr. Bola Oyeyipo, a family physician in San Antonio, Texas, we’re answering some of your most common questions regarding MS so that you can live your best life.
1. “What kind of MS do I have?” There are four types of MS: Relapsing-remitting MS, Primary-progressive MS, Secondary-progressive MS, and Progressive-relapsing MS. Knowing which form you have is essential in fighting the disease because you will know what to expect in terms of how it effects your body.
“The conventional treatment for MS is often not pleasant – injections of immune-suppressing agents so it’s important to know the type of MS you have so your treatment can be tailored accordingly,” Dr. Oyeyipo says.
2. “How far along is my MS?” MS can be difficult to diagnose due to the fact that it cannot be detected by one single test and the symptoms tend to vary from person to person. As a result, many individuals have MS for quite some time before being diagnosed. By then, the disease will have progressed.
“The current way of diagnosing MS is finding evidence of damage in at least two separate areas of the central nervous system, which includes the brain, spinal cord and optic nerves,” Dr. Oyeyipo says. “This usually start months to years before the physical symptoms show up.”
She adds, “Knowing the extent of demyelination of the brain and spinal cord helps to guide what treatment options to take. The more extensive the disease is, [the patient will require] a more aggressive approach, [such as treatment] with immunoglobulins and steroids to preserve physical function and to achieve remission.”
MUST READ: Do You Know The Different Types Of Multiple Sclerosis?
Hutson found prison life was isolating, no surprise at a time when one 15-minute interstate phone call could cost an inmate as much as $17. Isolation is an ongoing hurdle for prisoners and their families, as research has repeatedly shown that keeping inmates connected with loved ones and support structures on the outside helps reduce recidivism rates.
“[Incarcerated] people who maintain supportive relationships with family members have better outcomes — such as stable housing and employment — when they return to the community,” reads one study by the nonprofit Vera Institute. “Many corrections practitioners and policy makers intuitively understand the positive role families can play in the reentry process, but they often do not know how to help people in prison draw on these social supports.”
Such research, coupled with his own experience, gave Hutson a new idea. Today, that idea has transformed into Pigeonly, a $3 million tech company specifically tailoring products for underserved communities, particularly the incarcerated and their families.
Hutson launched Pigeonly in 2013 after receiving coaching and input from the NewME Accelerator in San Francisco, which helps support underrepresented entrepreneurs. Pigeonly’s products to date include Fotopigeon, a prison-friendly photo-mailing platform, and Telepigeon, a service that drastically reduces the often cost-prohibitive price of phone calls to and from correctional facilities.
“Most people don’t have life sentences, so the real question we have to ask ourselves is, what type of person do we want to release?” Hudson, now 31, told The Huffington Post. “Someone who’s isolated from everyone they know and lost touch with everyone who could support them who, when they’re back on the street, are way more likely to go back to the previous activity they were doing before prison? No.”
The Las Vegas-based company says it has already had a great deal of success with its flagship products in a relatively short period of time.
Fotopigeon prints photos uploaded by a user and mails them to a prison on the user’s behalf, carefully abiding by the strident and sometimes confusing regulations that govern mail sent to prisons. The service already has a base of 80,000 customers who have uploaded over a million photos, at 50 cents apiece with free shipping, since the service began.
Hutson told HuffPost the company is currently shipping a quarter of a million photos a month.
“It’s something that has very high value when you’re isolated from everything you know,” Hutson said. “Think about how important images are in daily life on the outside. It’s crazy to think it’d be any different for the 2.3 million people in prison or the 20 million people who want to communicate with them.”